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we finally had our meeting with the cranial specialists. virginia was diagnosed with plagiocephaly. the flatness on the left side of her head is affecting her ear (shifting forward) and eye (facial asymmetry.) she was measured and photographed repeatedly for her custom designed helmet. because she is growing so quickly she starts treatment next week. we tried at-home positional therapy and it obviously didn't work. I am having a fit.
ginny has always favored the left side of her head. we're told that most likely this started in-utero. sleeping on her back (as you know, to avoid SIDS) has only added to the problem. we are instructed to do physical therapy as well to help strengthen the muscles in the right side of her neck. she hates it! tummy time is usually a battle with lots of tears. we have a lot of work to do.
in the meantime I will join (yet another) online group for support. the therapist suggested we do so to "talk" with other parents. ginny is expected to sport the helmet for at least 2 months, 23 hours a day. we will see the specialist once a week for adjustments. it's a 45 minute drive each way. shit. nothing is easy. but after extreme infertility, an anxious pregnancy, HORRIFIC labor and delivery, hospitalization for jaundice, episiotomy incontinence, seriously infected nipples, never ending UTIs, a bout of colic, breastfeeding "gone wrong," and single parenthood, why should anything be easy?
if anyone has any experience with plagiocephaly I'd love to hear your story. in the meantime we will have to take tons of pictures of our beautiful ginny with those sweet, wispy locks.